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Showing posts from December, 2024

Creating Christmas Memories

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Saturday night, we loaded up the family truckster and headed out for some Christmas fa-la-la-la fun at the Christmas Factory.  Apparently, we weren't alone in our desire to celebrate a little Christmas spirit, because I see some of my friends also posted pictures from their evening there as well!! There were photo ops aplenty!  Here's Kennedy and Preston and the Abominable Snowman! The whole family- Christmas sweaters, Christmas jammies and all! Awweee!  Aren't they cute?! And in love?! Lots of displays, Christmas music, lights and sounds! All the "kids"!! We finished the evening with dinner at Hideaway, one of our favorite restaurants for fish.  If you've never eaten there, you're missing out! This was a fun way to spend an evening, especially during my week off of treatment.  I love having all the kids around, and hearing about their lives.    "This Week in Medicine" has labwork and a RN visit on Monday, then treatment at main campus on Tuesday...

(Not quite) Ready to Run

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Since being hospitalized then in the care center and back to the hospital and now home, my nutrition and exercise suffered severely.   I lost 60 pounds total, along with a lot of muscle mass and strength.  Since I've been home, I've worked with PT and OT therapists trying to regain the ability to simply change positions in bed on my own. My legs have neuropathy, and feel like pins and needles tingling all over all the time, along with having seriously cold feet all the time.  Because of the neuropathy, I've had to start at square one and relearn how to stand and walk. I'm working through all the exercises that the therapists give me, and this week I'm glad to say I'm finally standing and walking pretty confidently with my walker.  Here's video proof: It's definitely a weird sensation walking on legs and feet that you can't feel.  I now need to work on my core strength so I can move from sitting to standing on my own.  Being able to get myself in and ...

Busy Week

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This has been a busy week for us. Monday was a day off school, but Sydney had some odds and ends errands to do that included a dentist appointment and referral to get her wisdom teeth removed.  Also replaced the chipped window in the Jeep. Tuesday FINALLY my home nurse got rid of my catheter and had a followup visit with urology to make sure I wasn't retaining urine.  Everything checked out fine, so I've got no strings attached- That's a freedom that couldn't come soon enough.  I also had pre-treatment labs drawn. Wednesday was eventful.  Our first event was Sydney's athletic commitment day at her high school.  She signed her commitment letter to play lacrosse at Capital University in Columbus (separate post coming soon).   It was also treatment day at Main Campus.  The labs were done ahead of time, so we were set for a quick afternoon visit.  A slight change of plans when the labs were reviewed- I needed a blood transfusion as well, so more ...