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Showing posts from October, 2024

Mom's Day Out

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Today, it's a big day. I left the house for a non-appointment. I'm dressed in normal clothes. I'm putting on shoes and socks. I'm even "doing my hair." 3 Brothers with my family. Philly cheesesteak sammie, fresh cut fries.  A little Browns action on the big screen.  How about a Browns W?!? It was a good day.  Chemo tomorrow. Pray for  a good night"s sleep tonight, an easy IV start tomorrow, and few side effects this week. This is day 133.

A Day In My Life

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Home.  No place like home sweet home. The past couple weeks have been two weeks of adjusting to new everything.  After a week at rehab, and then a week in the hospital, I knew exactly where I wanted cared for. Being home isn't easy, but 1000% worth it.  Thank God for family that has been able to care for me.  Thank God for a husband that is able to lift me.  Thank God for a husband that isn't scared or intimidated by the hard parts of caring for me- bed baths, and briefs and appointments and therapy.  He's my hero. I'm lucky to have a home that can accommodate my "new" hospital bed and wheelchair.  Today, I'm up and sitting in the chair while I blog, but I do spend a good deal of time in bed napping.  I have my own little office-turned-bedroom, but currently I'm able to sleep in my "real" bed and just spend day time in my "new" bed. I thought I'd share a quick snapshot of a day in my life now. My day starts around 9am.  I wake u...

I Love a Parade

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Things were dicey for a few weeks and there was a lot of stress and such.  But it's Friday, it's 5 o'clock somewhere, and I have an appointment with the oncology team to figure out how to coordinate care closer to home so we can resume chemotherapy. The "meat and potatoes" of today's post is long overdue.  I've thanked you once, twice, many times, but I don't want ANYONE to have the impression that we are not grateful or thankful for what you have done.  So many of you have blessed my family with something thoughtful or special to help us during this time.  I began writing thank you notes and lost track after about 2 weeks.  But I definitely wanted to take time and thank everyone who has loved on our little family, via cards, gift cards, gift, blankets, flowers, food, visits, lawnmowing, house cleaning, cooking, dog sitting.  I know this is a little less than personal way to thank people, but between my energy and my memory recall, writing a note to ea...

Quick Update

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ER visit yesterday to rule out sepsis.  Blood pressure was 80/60. HR 135. Temp 100.7.  Ended up with a UTI diagnosis. Also got a blood transfusion for hct 23%.  Rest of the blood counts (white cell lines) are good. Platelets are good.   Feeling better today.